Never Giving Up and Never Wanting to - A Caregiver's Journey by Barry Tutor
Join Barry Tutor, author of the Alzheimer’s/Caregiver book, Never Giving Up & Never Wanting To, as he tours the blogosphere October 21 – November 1 on his first book blast with Pump Up Your Book!
ABOUT NEVER GIVING UP & NEVER WANTING TO
Like most, I knew about Alzheimer’s disease. It causes old people to
forget. When my relationship with this disease began, it highlighted how
little I knew. Following my widowed mother’s Alzheimer’s diagnosis, I
researched this disease to gain insight about my new role as her
caregiver and decision maker. What I learned and experienced during her
affliction still left me somewhat unprepared for what was yet to come.
Sixteen months following my mother’s diagnosis, my dear wife and best
friend was diagnosed with early-onset Alzheimer’s. Though now I was
familiar with this silent killer, my wife’s diagnosis set into motion
many changes and challenges in our lives. Someone is diagnosed with
Alzheimer’s every sixty-eight seconds. Currently, Alzheimer’s is the
only disease in the top-ten causes of death that is on the increase and
has no means of prevention and no possible cure. Given these facts,
support for those afflicted relies on increasing levels of caregiving as
the disease progresses. Let me explain something about this “old folk’s
disease.” Alzheimer’s affects more than just parents and grandparents.
It is also the disease of siblings, spouses, and children. Alzheimer’s
forces many families to decide between home versus institutional care.
An estimated fifteen million caregivers provide some level of care to
the Alzheimer’s victims still living at home. No matter what level of
care you are providing, the importance of preparation is paramount.
Arming yourself with knowledge begins that preparation process. I was
unprepared for the roller-coaster ride my life became as the sole
caregiver for two Alzheimer’s victims. To meet their varied challenges, I
adapted and developed multiple techniques for targeted personalized
care. If only I knew then what I know now. By sharing my knowledge and
experience, I hope to better prepare you for your caregiving journey.